Type of Fellowship: General
Year of Fellowship: 2013
Ceinwen has worked for a large number of international charities and agencies including the United Nations, the UN High Commissioner for Human Rights and the International Planned Parenthood Federation. Over the last 12 years she has developed a career encompassing access to housing, human rights protection, social inclusion and poverty reduction. While studying for her Master's Degree in Canada, she co-founded the Sporting Partnership of Universities and Northern Communities, an initiative to enable children in isolated Aboriginal communities participate in sport. She later lived in South East Asia for several years, working for a Vietnamese NGO, in which she was the only foreigner.
Diagnosed with Stage 4 non-Hodgkin lymphoma in 2010, six weeks after the birth of her daughter, she became very active in the UK's cancer support sector. In addition to volunteering with Cancer Research UK, she sits on the Patient Experience Board of the University College Hospital-Macmillan Cancer Centre.
Ceinwen is a Trustee of Shine Cancer Support, a charity which supports adults in their 20s, 30s and 40s affected by cancer. Her work with Shine is focused on expanding the organisation's reach in the UK by developing and leading the Small c Project, an initiative devoted to providing support to, and advocating on behalf of, young adults with cancer. This project draws on the bottom-up community development expertise gained during her international development career. She was recently selected as a London 2012 Torchbearer.
Personal website/ blog: www.shinecancersupport.org
Current principal role: Director
Current principal organisation: Shine Cancer Support
Other leadership role 1: Freelance Consultant
Other organisation 1: Working in the fields of patient experience & improving patient outcomes
Other leadership role 2: Trustee
Other organisation 2: Point of Care Foundation
Other leadership role 3: General Advisory Council Member
Other organisation 3: King's Fund
Research: Information and support needs of young men with cancer
Research topics: Health and well-being;
Secondment host: Centre for Patient Leadership